Friday, June 19, 2020

Planning for my Saplingo Oophorectomy

I just had my first consult with a my oncology gynecologist. Because I have the BRCA1 mutation, I'm at higher risk for ovarian cancer. The recommendation is to remove your ovaries and fallopian tubes before age 40. Because I didn't know I had this mutation until recently, I'll probably miss the mark by a few months, but I'm planning to have the surgery during my implant exchange surgery, which I'll schedule after I'm done with oral chemo (Xeloda). 

The doctor I met with was fantastic and I'm really happy to have found her. My biggest question was whether I would also need a hysterectomy, a procedure that seemingly more BRCA1 patients are doing. Especially because I have a toddler, I'm hesitant to undergo a procedure that will make it difficult to get back to everyday life unless it is medically necessary and has clear benefits. She is on the same page - although there is always some chance of uterine cancer, there is no clear link proven by science and she feels that the risk of removal and an additionally invasive surgery outweighs any benefits. This was a relief for me to hear. Of course, I'll have imaging and a uterine biopsy if necessary, and if anything shows up I would go ahead with the procedure. But for now, if everything looks normal, I'll plan to keep the uterus - I could always get it removed later.

I also asked about hormonal therapy because the doctor at Dana Farber I met with said she would be comfortable with me going on hormone therapy because my cancer is not hormonal. However, the doctor I met with today said she never feels comfortable with hormone replacement in cases where the patient already has breast cancer. I'm totally willing to give it a try without. I'm less concerned about side effects of menopause and more concerned about the long-term health implications of not having estrogen. She's going to refer me to a team who specifically deals with menopause and I'm eager to hear what they have to say about avoiding the health risks of early menopause.

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